7-Days Post Touch-Up Treatment

It has been about a week since my touch-up treatment with Dr. McGinley, and unfortunately my pain has not yet subsided. My symptoms are still as strong as ever, and I am constantly frustrated with my lack of mobility.

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With the whirlwind of emotions continuously giving me a run for my money, I’m still hopeful as there are a few additional and key pieces of info I learned during round two of the procedure.

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Taking the Second Shot

Hello from Casper, Wyoming! I’m back and ready for round two of the Botox injections. My appointment is first thing tomorrow morning, and I’m currently feeling a whole slew of emotions. From the anxiety about the needles (again) to nervousness about the ‘what-if’s’ post-procedure, I’m still 100% all-in and keeping my fingers crossed that this touch-up is exactly what my leg needs to be pain free.

Casper downtown
Cheesin’ in Casper

To be clear, the decision to come back to Casper and visit with the McGinley group wasn’t easy. I had a standing appointment scheduled with arguably the top surgeon in the states for CECS. That appointment was supposed to be this week, but after weighing the pro’s and con’s, there were a few important factors that really swayed my decision to give this one last shot (literally).

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The Mental Side-Effects of Chronic Pain

For those also diagnosed with Chronic Exertional Compartment Syndrome, do you ever find yourself bummed out that you can’t partake in activities you once enjoyed, actively avoiding anything that will bring on the pain, or being constantly overcome with extreme exhaustion from the lack of sleep and constant ache?

Yeah, sounds like an infomercial for my current life. Welcome.

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The pain you experience during activity is one thing, but the mental effects of constant pain are a whole other ballgame. I wasn’t familiar with these effects, and if you’re like me, you may be overlooking some side-effects that have developed due to this sneaky neurological nightmare.

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Progress Report: 1 Month Later

It has been just over a month since I had undergone Dr. McGinley’s procedure to correct and alleviate any symptoms of Chronic Exertional Compartment Syndrome (CECS), and I’m incredibly disappointed to report that I have not had much relief. Even though I followed all instructions given and pushed my leg a bit more with some recent travel and activities, I still feel like I’m back at square one.

Pressure Test

After speaking with some representatives from McGinley’s team in the past two weeks, they’ve determined that I need a ‘touch-up’. It’s tough for me to justify trekking back out to Wyoming so soon, let alone having to shell out some additional G’s for the procedure itself. However in this post, I’m including some of the feedback from the McGinley team along with my own personal symptoms and rationale as to why I’m considering going back.

Hopefully this will be helpful for anyone going through the same predicament!

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I’m Alive! Progress Post-Botox

Good news. It didn’t hurt as much as I had anticipated and I also still have a functional leg attached to my body.

CT Scan

My apologies that this progress post is a little delayed! In all honesty, after flying back home from Casper, the only thing I wanted to do for the rest of my 3-day weekend was absolutely nothing – and it felt great. Although I’m still waiting for my magic moment of no-pain, the trip was 100% worth it, and I figure it could be helpful to list out what I expected from the procedure vs. the reality.

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Pre-Botox Jitters

Here we are! I made it to Casper! Minus a few delays out of SFO and a connecting flight later, it has been a smooth first day.

I’ve never been to Wyoming before, and I have to say that the views are beautiful. It’s that vastness that is difficult to capture with the only way to take it all in is to just enjoy the moment.IMG_1114

Snapping back to reality, though, tomorrow is the big day, and I’m experiencing all sorts of feelings and anxiety about Dr. McGinley’s Vascular Pressure Treatment. In order to combat the nerves, I think it’ll be helpful to list the reasons behind why I decided to move forward with the procedure in the first place.

 

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Botox, a Miracle Drug? Countdown to my last resort…

The most mentally debilitating part of dealing with chronic exertional compartment syndrome (CECS) and popliteal artery entrapment syndrome (PAES) is the constant struggle of finding the right doctor with a solution that actually works. I can’t even begin to share the state of frustration and plain exhaustion I’ve been suffering through for the past 2.5 years.

In other words, I am desperate to try anything to relieve my pain and get me moving like a normal human again.

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